Zygomycosis, also known as mucormycosis, is a disease that attacks cancer patients like Hank and others when their host defenses are compromised by treatment. Though Hank’s leukemia had resurfaced following his bone marrow transplant in September, 2007 it was this deadly fungal infection which eventually robbed him of his eyesight and ultimately took his life in December of 2007. Through your generosity the Foundation was able to publish in 2012 (Oxford University Press) a medical and scientific supplement on Zygomycosis which reached almost 12,000 medical subscribers worldwide. Our Foundation sponsored the conference which generated this research and then paid for its subsequent publication after its acceptance by the prestigious journal, Clinical Infectious Disease (“CID”). It is entitled “Advances Against Mucormycosis: A Tribute to the Memory and Courage of Hank Schueler”.

This Supplement was edited by Dr. Thomas Walsh, the Director of the new Transplantation-Oncology Infectious Diseases Program at Cornell University Medical Center (Weill-Cornell Medical College and New York Presbyterian Hospital) in New York. It is widely held as the most comprehensive and authoritative body of research on the subject of mucormycosis in the world.

Shortly after its publication, Dr. Walsh wrote a note to the Study’s authors and members of the Henry Schueler Foundation Board:

Dear Co-authors and Members of the Board of the Henry Schueler 41& 9
Foundation,Enclosed is the complete publication of our work, “Advances Against Mucormycosis: A Tribute to the Memory and Courage of Hank Schueler.” This CID Supplement is available in the public domain through your expertise and generosity to serve as a powerful resource to guide the management and research of mucormycosis. I thank you for your dedication, knowledge and compassion in honoring the memory of Hank and in securing a better future for our patients who will battle this terrible infection.

In 2013, Dr. Walsh was also named as the Henry Schueler 41 & 9 Foundation Scholar. This title accompanies all of his correspondence, manuscripts, and other publications and confers greater public awareness of the Henry Schueler 41 & 9 Foundation and assists Dr. Walsh in pursuing the Foundation’s mission in mucormycosis. His Mission and ours is to develop new strategies for diagnosis, treatment, and prevention of invasive mucormycosis., increase public awareness of the epidemiology, morbidity and mortality of invasive mucormycosis., and to provide expert outreach assistance to patients with mucormycosis, their families, and their physicians.

In May of 2013, Dr. Walsh gave the Inaugural Henry Schueler 41 & 9 Foundation Scholar Lecture on Mucormycosis at Northwestern. The event was chaired by Dr. John Flaherty, a Sauganash resident, who serves as Professor of Medicine and Associate Chief, Division of Infectious Diseases at Northwestern University Feinberg School of Medicine.

The turnout was excellent and discussion afterward was enthusiastic. The Lecture served as an important benchmark for our past achievements and future plans..

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